Sad! Doctors declare Kanpur girl's skin disease as RARE and INCURABLE

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This disease is so rare, that only 15 people in India are suffering from it.

While technology and science is advancing, shocking other revelations sadden our hearts. Sometimes even money cannot buy health, and one such disease that is termed as incurable Darier disease.

Also known as DAR (Dyskeratosis Follicularis or Keratsis Follicularis), is an autosomal dominant disorder discovered by French dermatologist Ferdinand-Jean Darier. Darier’s is characterized by dark crusty patches on the skin.

A 20-year-old Kanpur girl was detected with this dreadful incurable skin disease. Shalini, was diagnosed with DAR after a month of pathological research. Doctors from GSVM Medical College were trying to treat her skin rashes but were not successful in doing so.

It is a rare skin disease…

This disease is so rare, that only 15 people in entire India have been reported so far, who are suffering from this. Though this is not a life threatening disease, in most cases it cannot be treated, while in a few can be controlled or considerably reduced.

As reported by DNA, Mahendra Singh, the head of the Pathology department at GSVM, said, initially they could not detect the girl’s disease, which had given her dark red crusty patches. “We conducted pathological tests for over a month and consulted our counterparts abroad and finally came to the conclusion that she was carrying Darier skin disease.”

Prof Singh said that they had earlier thought that the girl had developed some strain of psoriasis and had referred her to the surgery department. “A biopsy revealed that it wasn’t so. That is when we began conducting various pathology tests.”

DAR disease- for reference only. Courtesy: medical marijuana

DAR disease- for reference only. Courtesy: medical marijuana

Who are at risk?

The age group of 16-30 years is most susceptible to this disease. DAR, in the worst case, can lead to the formation of pus, too. The fragility of fingernails, deformity and vertical striations are found in those in the advanced stages.

What causes this disease?

The most common cause of this disease is genetic inheritance from parents. But there are few other factors also involved, mostly lifestyle and weather-related that cause this disease. Humidity, stress or tight-fitting clothes can also trigger this.Worldwide, researchers are struggling to find a cure for the disease.

Which body parts are affected?

It usually affects the chest, neck, back, ears, forehead, and groin and may spread to other areas. Though this is not a life-threatening disease as mentioned earlier, patients undergo a lot of mental trauma due to the fear of social stigma. Many patients are given neurological medicines to keep them mentally stable and accept the disease.

Is it contagious?

Nothing has been substantially proven, but many researchers consider this DAR disease to not be contagious. The definite cause of this disease is yet to be established but for now, only few possible reasons are taken into consideration.

Precaution is the only known prevention and dermatologists generally recommend patients to avoid extremely humid conditions or exposure to direct sunlight for a very long period.

Also Read: 8 common winter diseases in India and how to protect your child from them

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